Traveling

        Hey everyone!  Today' post is going to be a little short because we've been preparing to go to California!!!  That brings us into today's topic, traveling, packing, and all the joy that comes with it (in case it wasn't obvious, that was sarcastic). 

        I don't go father than Salt Lake City almost never but when I do, it takes about a month to prepare.  Last week I talked about all the equipment I use on a daily basis and that doesn't change when I'm sleeping in a different bed.  The first step is my mom orders extras of almost everything I might need in case something breaks down or there's no chance I run out of anything.

    Next step is a list.  My mom makes a list of every machine, device or medicine I need to take so she can cross it off as we pack.  My mom is probably the most organized person I know.  I tease her about it a lot but ultimately I'm grateful for it because if it wasn't for her organization skills heaven knows we would undoubtedly forget something and being 12 hours away from home makes forgetting a piece of my supplies a very bad thing.  

    I have so much stuff that our van is usually filled to the brim.  It's not the most ideal situation when need something and my mom or sister have to sneak to back of the van to help.  A bowl in a china shop is not a figure of speech for us.

        I made all of this sound like a pain in the butt, which it is, but it's worth it to experience new things.  You only have one life to live, have to experience it to the fullest.

        That's it for me this week!  Expect next weeks post to be a day late because I'll be in Cali!  Bye till next week!

 Growing Up

        Hey it's me again!  Today I want to talk about what growing up was like with my special circumstances.  Some of the ups and downs that come with it, and also how it was similar to everyone's childhood.

        My early life wasn't as glamorous as others.  Instead of learning to hold my head up or crawling around trying to get my hands into everything my parents didn't want me to like any other baby, my first few years of life was spent in and out the hospital every few weeks, battling pneumonia constantly like it was a new trend I was trying to start.  It was almost like little me wanted to keep my family on their toes.  

         Eventually I survived long enough to make it to the age where I was old enough to finally use the medical equipment I needed to make me more stable in my daily life.  Since then my every day routine consisted of breathing treatments multiple times a day, list of medications as long as my arm, even needing assistance with a machine every time I needed to cough.  Sounds hard and annoying to do every day, which it can be, I won't lie, but it's all I know and it keeps me healthy as much as I can be so the pros outweigh the cons.

        School growing up was fun, it was one of the few places I could run around without my parents.  I just got to be a kid in a regular class with friends and the few childhood crushes (we all had that one boy in elementary school we would chase around, no one lie).   High school wasn't as picture perfect though.  My health got a little worse and I seemed to hit a patch of depression.  Starting in 5th grade I started doing school from home during the winter, then went back by spring.  In high school I lost the motivation to go back after winter passed.  My head was telling me all my friends moved on, found other people to hang out with.  When senior year hit I didn't want to spend my last year of high school being sad in my room so I made it a point to go to every activity I could until I dropped.  My friends and school aid Darcy were actually a huge help in that, they took me under their wing and introduced me to other friends who I never got a chance to meet while I was at home.  It was the best year of my life (besides when Covid hit but we're not going to talk about that right now).  

        All this might be hard to do alone but I had parents and siblings to be with me through it, one brother in fact who went through the physical limitations I did.  Aunts, uncles, and grandparents deserve honorable mentions as well.

        Growing up I was never allowed to feel sad about my situation because I am surrounded by support from friends and family and I didn't want to live life depressed and bitter.

        That's it for me here this week.  Don't forget to follow and leave a comment down below.  Till next week!

 Hi again!

Here we are again... I tried keeping up with a blog almost 3 years ago but didn't find the motivation to continue it.  This time I'm feeling inspired and thought to try this again.  People say I have thoughts they want to hear so let's try this again.

First, let me introduce myself for those reading this that aren't friends or family. My name is Rylie Carpenter, I'm 21, and from Logan Utah.  I currently work at a medical supply store as the social media specialist, which is just a fancy name for someone who gets paid to post and advertise the store.  On top of that I also make videos for whatever the store may need at the time.  I have two siblings, an older brother who gained his angle wings in 2021, and a little sister that's here with me on earth.  My mom is a medical assistant, while my dad works as a mechanic fixing cement trucks.  I have two step parents.  My step dad owns a food truck, and my step mom works at in the shipping department of a store that sells firearm accessories. Some of my hobbies include writing, making videos, cooking, listening to music, watching and geeking out over movies, I really love anything in the creative or entertainment space.

On the surface I seem like your average 21 year old girl, which I am, except for one kind of big detail.  You see I was born with a rare form of Muscular Dystrophy called ,Merosin Deficient Congenital Muscular Dystrophy... big words, I know.  Basically what it means is, my muscles get weaker over time.  I've never been able to walk or run, and I need help with every daily task from getting ready in the morning, to setting up my food for the day, you name it, I need help with it.   On the surface it sounds pretty tragic, I won't deny that, but there can be some positives to it all.  I get to ride around in a hot pink chair, I get free handicap parking, I get the best seats at concerts and movies,, and many other perks.

So that's me in a nutshell...  If you're interested in hearing more from me follow me.  Expect posts every Thursday talking about all different kinds of things, heavy topics or simple weekly updates.  Comment any questions or themes you want me to talk about, whether it be advice on staying positive, questions about me, anything at all, I'm pretty much an open book.